Products

This products section will be dedicated to the products that Sjogren’s patients are using; have been prescribed or find most helpful.  It is not an endorsement of any specific brand(s) and is intended only, to be a quick reference of various products used for specific symptoms.  The products listed will be based on information obtained on  Sjogren’s Forums & ListServs about products that members have shared with other Sjogren’s patients. Please do your own research, due diligence and/or discuss with your physician before using any of the mentioned products.

Please note: I try to determine at least one location where you may purchase these products (as I confirm them). You may be able to purchase something at a local pharmacy that I have listed as an online purchase. Or you may be able to find any of the products online that are listed as an over the counter purchase. If you have a suggested product you would like me to add to the list, please let me know what it is & where it can be purchased.

Rx = Prescription required    OTC: Over The Counter    O: Must/can be purchased online

EYES

  1. Restasis (Rx): Ophthalmic cyclosporine is used to increase tear production in people withdry eye disease. Cyclosporine is in a class of medications called immunomodulators. It works by decreasing swelling in the eye to allow for tear production.
  2. Systane Ultra (OTC) Most Pharmacies: Preservative-free, high performance dry eye therapy in single use vials.
  3. Systane Gel Drops (OTC) Most Pharmacies  : Creates a stronger gel-like bandage on the eye – for severe dry eye.

4.  Similasan Dre Eye Relief (OTC) Most Pharmacies: Homeopathic Eye Drops: Specifically formulated to address symptoms associated with dry eyes such as dryness, redness, sensation of grittiness, reflex watering secondary to dry eyes, and sensitivity to light.

5.  Genteal Gel (OTC) Most Pharmacies: Severe Dry Eye Relief Lubricant Eye Gel

6.  Genteal Gel Drops (OTC) Most Pharmacies : Moderate to Severe Dry Eye

7   Genteal Eye Gel (OTC) Most Pharmacies: Severe Dry Eye Relief

8.  Genteal PM (OTC) Most Pharmacies: Concentrated ointment lubricant – preservative/lanolin-free

9.  Lacrisert (Rx):  Lacrisert1 (hydroxypropyl cellulose ophthalmic insert) is a sterile, translucent, rod-shaped, water soluble, ophthalmic insert made of hydroxypropyl cellulose, for administration into the inferior cul-de-sac of the eye. For most LACRISERT® users, just one insert placed in each eye in the morning lasts the entire day

10. Azasite (Rx): AzaSite is an eye ointment containing azithromycin, a macrolide antibiotic that fights bacteria. AzaSite is used to treat eye infections caused by bacteria. Some Doctors are prescribing this for Blepharitis.

 

NOSE

  1.  Pretz Spray (OTC): Preservative-free lubricant: Walgreens/Purnell Pharmaceuticals

2.  Saline Spray (OTC) Most Pharmacies: Many Brands

3. XClear (OTC) Most Pharmacies: A combination of xylitol and saline nasal spray that has shown to be effective in soothing and moisturizing the sinuses and nasal passages.

  1. NeilMed NasoGel (OTC) Most Pharmacies: A drug-free saline based water soluble nasal gel formulated with sodium hyaluronate to provide nasal moisture.

5.  Salinexand moisturizes nostrils. Spray (OTC) Most Pharmacies: A salt solution spray that rinses

  1. Breathe-ease XL Moisturizing Solution (O): Breathe-ease is an additive-free moisturizing formula that is used as both a spray & is also used for sinus irrigation. One patient was directed by her ENT to use this solution with a water pik (special attachment).
  1. Nasonex (Rx): Nasonex is used to treat and prevent nasal symptoms such as congestion, sneezing, and runny nose caused by seasonal or year-round allergies
  1. Nose Better Natural Mist Moisturizing Spray (OTC): Created specifically for year-round nose care, Nose Better Natural Mist Moisturizing Spray bathes your dry nasal passages with a gentle, soft, moisturizing mist that soothes in seconds. Helps make breathing easier and more comfortable. No alcohol.

 

 

6 Responses to Products

  1. mike says:

    Hi this may not be the right place to contact you but it’s all I can find.
    Please remember Sjogrens is not a womens disease it affects men and children too I am male and totally empathise with all your blog but I am male the blog keeps saying “women” same problem with medics “you can’t have Sjigrens you’re male” well we do and there are millions of us please remember us too.

    • vitalsignspgh says:

      Hi Mike.

      This is the perfect place to contact me. You are exactly right…males and children of both sexes get Sjogren’s. I do not mean to exclude anyone in what I write about Sjogren’s. Lord knows that Sjogren’s is an equal opportunity disease that robs all of us. I know that the numbers of males who have Sjogren’s is strongly under-reported as it is for females also. At the Sjogren’s Convention I just attended last weekend, I also learned that they are finding that when they do skin biopsies on Fibro Myalgia patients, they are finding that many of these patients really have Sjogren’s. I am excited about all of the Sjogren’s research that is now being done. Hopefully, someone can get a handle on the true number of male Sjogren’s patients there really are. I co-lead a Sjogren’s support group here in Pittsburgh, and I have a few males in our group.

      I never forget that there are lots of males with Sjogren’s. And I don’t mean to exclude anyone with my blog. I see my blog as more of the Sjogren’s patient experience than the male or female Sjogren’s experience. Perhaps you would like to write a guest blog post for my blog? I would love to feature your story.

      Please let me know if you would like to be a guest blogger. And thanks so much for sharing your comments.
      SjoDry

  2. John Canvin says:

    I would like to see Oral7 dry mouth moisturizing oral care products added to the product list. There are Sjogren’s suffers that use Oral7 daily for relief of dry mouth symptoms. Available on Amazon.com and https://www.SterreHealth.com

    • Thank you John. I really need to do an over-haul on that category. It’s finding the time to do it. I will definitely add it when
      I can do a good job of updating the entire section.

      Thanks for sharing.
      SjoDry

  3. Charles Robinson says:

    I used Lacrisert three times each with slightly progressive side affects as per the ” Black Box ” warnings.
    The third and last time a experienced an adverse reaction that was a great deal worse than any warnings.
    Both of my eyes swelled and I could not open my eyes.
    My eyes were absolutely caked with a yellow discharge.
    Incredible pain and irritation as well as blurred vision to a measured point of 20/200 , which is legally blind .
    I have never fully recovered my vision and my right eye still will not completly open.
    I still have an opaque film that covers both retina everyday .
    I was prescribed Lacrisert for chronic dry eye, Blepharitus.
    I did my research and saw no reported problems ,so I used the drug as prescribed.
    I am leaving reply to help others avoid the potential for this damage to their priceless eyesight.

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