Category Archives: Sjogren’s Advocacy

Doing my part for the Sjogren’s Foundation

I Have Sjogren’s Syndrome and I Am All Alone

THE MESSAGE WE RECEIVE.. FROM DOCTORS.. A Doctor or Two or Three Has: Spoken, Said or Treated You: As if you are a hypochondriac You’ve mentioned more than a few symptoms, time’s up Don’t you think you’re spending too much … Continue reading

Posted in Searching for Answers, Sjo Sad, Sjogren's Advocacy, Sjogren's Syndrome National Patient Conference, Support | Tagged , , , | 3 Comments

SHE’S ALIVE!

SjoDry Survives.. It is with great relief that I can report that SjoDry did not hear the “L” word (Lymphoma). I can always look back at my previous blog posts and tell exactly how I was feeling when I wrote … Continue reading

Posted in And the research says..., Random, Searching for Answers, Sjogren's Advocacy, Sjogren's In The News, Symptoms, Uncategorized | Tagged , | 6 Comments

SSF Clinical Practice Guidelines for management of Sjogren’s

Thanks to Julia at Reasonably Well who provided this recent article by Frederick Vivino. So glad that the professional medical community will begin to recognize Sjogren’s Syndrome in a more meaningful way.  

Posted in Scholarly Articles and Such, Sjogren's Advocacy, Sjogren's In The News | Tagged | 1 Comment

Why Not Me?

We’ve all heard the saying that there is strength in numbers and that could not have been more true than with the first meeting of our Sjoggies in Pittsburgh (SIP) initial support group meeting that was held on May 4, … Continue reading

Posted in Random, Sjogren's Advocacy | Tagged , , , | 2 Comments

Validation in Sjoggie Nation!

SjoDry is back from the Sjogren’s Syndrome Patient Conference in Bethesda, MD. It was my first patient conference so I was not quite sure of what to expect. But I must tell you, I was very pleasantly surprised. Of course … Continue reading

Posted in Random, Searching for Answers, Sjogren's Advocacy | Tagged , , | 2 Comments

April…is Sjogren’s Awareness Month

Here is is..the first day of April. For some it is that quirky day that happens once a year where a silly prank is played on you or you play one on someone else. But April 1st and even the … Continue reading

Posted in Random, Sjogren's Advocacy | 2 Comments