Category Archives: Sjogren’s Advocacy

Doing my part for the Sjogren’s Foundation

I Have Sjogren’s Syndrome and I Am All Alone

Posted on March 27, 2015 by

THE MESSAGE WE RECEIVE.. FROM DOCTORS.. A Doctor or Two or Three Has: Spoken, Said or Treated You: As if you are a hypochondriac You’ve mentioned more than a few symptoms, time’s up Don’t you think you’re spending too much … Continue reading →

Posted in Searching for Answers, Sjo Sad, Sjogren's Advocacy, Sjogren's Syndrome National Patient Conference, Support | Tagged , , , | 3 Comments

SHE’S ALIVE!

Posted on March 13, 2015 by

SjoDry Survives.. It is with great relief that I can report that SjoDry did not hear the “L” word (Lymphoma). I can always look back at my previous blog posts and tell exactly how I was feeling when I wrote … Continue reading →

Posted in And the research says..., Random, Searching for Answers, Sjogren's Advocacy, Sjogren's In The News, Symptoms, Uncategorized | Tagged , | 6 Comments

SSF Clinical Practice Guidelines for management of Sjogren’s

Posted on September 18, 2013 by

Thanks to Julia at Reasonably Well who provided this recent article by Frederick Vivino. So glad that the professional medical community will begin to recognize Sjogren’s Syndrome in a more meaningful way.  

Posted in Scholarly Articles and Such, Sjogren's Advocacy, Sjogren's In The News | Tagged | 1 Comment

Why Not Me?

Posted on May 9, 2013 by

We’ve all heard the saying that there is strength in numbers and that could not have been more true than with the first meeting of our Sjoggies in Pittsburgh (SIP) initial support group meeting that was held on May 4, … Continue reading →

Posted in Random, Sjogren's Advocacy | Tagged , , , | 2 Comments

Validation in Sjoggie Nation!

Posted on April 15, 2013 by

SjoDry is back from the Sjogren’s Syndrome Patient Conference in Bethesda, MD. It was my first patient conference so I was not quite sure of what to expect. But I must tell you, I was very pleasantly surprised. Of course … Continue reading →

Posted in Random, Searching for Answers, Sjogren's Advocacy | Tagged , , | 2 Comments

April…is Sjogren’s Awareness Month

Posted on April 1, 2013 by

Here is is..the first day of April. For some it is that quirky day that happens once a year where a silly prank is played on you or you play one on someone else. But April 1st and even the … Continue reading →

Posted in Random, Sjogren's Advocacy | 2 Comments