My Medical Dream Team…It’s happened again!

p1newtonslaw

Newton’s Third Law… well kinda..

For every action, there is an equal and opposite reaction…do you remember learning that? Somewhere in the cobwebs of my aging mind,  Newton’s Third Law popped up when I thought about my most recent (last Friday, August 1st) doctor’s appointment with my new Neurologist.

You see, not long ago, I blogged about Arrogance and the Average Physician, in addition to previously blogging about some of my other ” please let me forget “  doctor(s) experiences. As I have mentioned before, I have strong feelings when it comes to both giving and receiving superior customer service, no matter what the industry may be!

And yes, I am one of those people who speak up when I am the recipient of poor customer service or patient care (their negative behavior = my equally assertive reaction). But the other part of that is that I also believe in being the first to compliment and call attention to wonderful customer service & patient care when I am on the receiving end of it (their fabulous customer service = my equally Because I’m Happy dance). I love to cheer & tell others about someone who is great at what he/she does or how kindly they treat the people with whom they must interact with as part of their daily job.

Sjodry’s Dream Team is coming together!

Like many of you, I have faced & dissected a number of medical frogs before discovering what has finally become my medical multidisciplinary dream team. When I first discovered what a gem my Immunologist is, I almost felt like weeping over my newly given blessing. I didn’t know whether to shout it from the rooftops or protect it as my classified top secret. I quickly gave him the nickname of  Dr. “Compassion”.

Without getting into the seronegativity of it all, let’s just say that SjoDry had a particularly difficult time establishing a Rheumatologist that she genuinely likes & did not just settle” for. Oh, did I mention that it took five years, 4 Rheumatologists, several flaring incidents of high blood pressure; tachycardia, flaming joint symptoms and tears before I found him?? But when I did find him..I discovered that he has a last name that can prove to be challenging for some (okay..Me). Being from the south,  I routinely slaughter words & names on a regular basis. So I asked my new Rheumatologist.. Please tell me…what is the correct pronunciation of  Noaiseh? I had asked some of his staff, and was told the following: 1. No-ice-uh  2. No-ice-ee & 3. No-ice-say hmm, still not sure. He just laughed and said, Just call me Dr. Nice “. He had no idea how funny I thought that was since I had dubbed my first team member,  Dr. Compassion. Pleasantly surprised to again have a very kind physician who intently listened to my rapid gunfire & unfortunately well-rehearsed repertoire of symptoms, could it be possible that I had discovered another SjoDry Dream Team Member? After multiple Rheumy appointments with Dr. Noaiseh, it is with pleasure and great thankfulness, that SjoDry has indeed confirmed another wonderful dream team member. Not only that…Sjodry has learned (actually researched beforehand) that Dr. Noaiseh trained under one of the leading Sjogren’s Syndrome Doctors in the country and is starting a Sjogren’s Syndrome Clinic here in Pittsburgh, PA. Did I mention the word, Blessing?

And then there was Jobe..

Dr. Blair Jobe, that is.  As you are all acutely aware, Sjogren’s Syndrome is the gift that keeps on giving!  Never mind all of the possible adjectives & crude gestures that could accompany that statement. I’m just mentioning it so you will understand why I added a Thoracic Specialist/Surgeon to my dream team. It just so happens he is also world renowned & invented the very uncomfortable & gag-inducing Impedement Test which required me to host a horribly intrusive tube up my nose & down my throat for 24 hrs. I think it was the most quiet I have ever been for 24 hrs. My husband, Steve didn’t complain about the side effects. But just for the heck of it, I looked up the name/word Jobe to see if it has any interesting meanings. I was surprised to see that the archaic use of the word jobe meant to criticize or scold. Now there are many physicians who could own that definition, but I am happy to report that Dr. Jobe is most certainly NOT one of them. I knew that I had another addition to my Dream Team, when on two separate appointments, Dr. Jobe apologized to me for being late & making me wait. Picture my shocked, whiplash-like reaction.  It was evident that his kindness & his ability to listen & treat me as if he had all day to spend with me, was his well established and ingrained standard of patient care. Score another one for SjoDry!!

Drumroll please…..

And now.. yet another fabulous doctor for SjoDry!! We have all learned (and it is usually true) that the really great docs we so desperately seek out, can take months to get into to see. In my case, it took 6 months to get in with my new Neurologist (Dr. Galen Mitchell). However, 6 months is better than his previous work location where patients had a two year wait. Is it just me or do any of you know the minute that you speak to your new physician, that you have just hit the physician lotto? From the moment he walked into the room with his kind smile, twinkling eyes, the shaking of my hand .. and YES…another apology for being late… I knew I liked him!

I am thinking that this pattern that I am recognizing with my great physicians, is their ability to connect as a caring person first, before I am met with the typically tightly constructed doctor wall. And in most cases with this type of caring doctor, the doctor wall doesn’t even go up. It is more of a professional and interactive conversation based on two people sharing information. There is a definite distinction that stands out to me. Now granted, we are still in our Doctor ~ Patient roles… it’s just that I have not been forced into the typical & well established Superior ~ Subordinate role.. before attempting to establish what I hope will be a trusting relationship. I wish all physicians knew that being kind to their patients & exposing a small glimpse of who they are as a person, will not compromise their physician role in any way and in fact, is very reinforcing to a patient. And after a lengthy search to find the right doctor(s) fit for me, I now recognize that the common thread that is shared by each of my dream team members is a mixture of: brilliance; knowledge of their field; the ability to listen; kindness; a sense of humor and compassion.

At my initial appointments with two different physicians/specialties, (who are now a part of my dream team), each physician said the same thing to me. After being blinded and deafened by my copius, complex and dis-jointed medical history, they responded with, ” You’re a mess “.  This comment always elicits a deja-vu chuckle from me. But more than that, it underscores that I have found the right physician. I very much appreciate a doc who will tell me up front, ” I don’t know what’s wrong with you “. Because so far, that statement has translated into me finding a doc who is willing to help me find answers, and more importantly, solutions! The reality is that I am a mess and it is hard, if not impossible, to determine the answer(s) to the universal Sjodry question of ‘which thing is causing which thing’ ?? But I know that we can all agree that finding a compassionate doctor who will truly listen and is willing to search for answers, is half the battle. Of course, it helps if he/she is personable enough to share his baked bean recipe with me and shares my same enthusiasm for a good bowl of  ‘down home’ southern cheese & garlic GRITS!

If you are still searching for your multidisciplinary dream team members, don’t give up! While I know that the search can at times, be a supreme exercise of frustration; wasted co-pays and stress, it is possible to find the right “dream team calibur” docs. And when that happens, you will be thanking yourself for continuing the search. And if I have learned anything on this rocky journey of poor health that we Sjoggies travel, it is that we are nothing, if not persistent!

So keep fighting the good Sjoggie fight and you will, in time, find your Dream Team along the way!

SjoDry

 

 

 

 

 

 

 

 

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Posted in HUMOR, Random, Searching for Answers, Sjodry's Doctor/Dx Quest, Symptoms | Tagged | 3 Comments

Always looking for a magic bullet….

Foods, Meds & Miracles..

COULD THIS BE SJODRY'S MAGIC BULLET??

COULD THIS BE SJODRY’S MAGIC BULLET??

There isn’t a day that goes by that I don’t find myself either researching,  scouring a store or website trying to play match the symptom with a miracle. I am sure that many of you are doing the same thing. We sometimes read the product ads & watch the commercials with some interest & perhaps, a spark of hope.

Of course the best kind of advice comes from other Sjoggies that we trust. It is universally understood that if you are a Sjogren’s Syndrome Patient, you have shelled out a whole lot of money in multiple product pursuits and probably have some credible product advice & success that you can share with other Sjoggies.

Of course, this search for miracles also applies to our quest for healthy foods and diets. I have blogged before about searching for the best eating practices for Sjogren’s Patients. I am consistently overwhelmed with trying to create a marriage between an anti-inflammatory diet and a Paleo/Mediterranean/something kind of diet(s). These efforts typically leave me feeling like a ‘deer in headlights’, dazed & paralyzed, without any plan of action.

During my (increasingly frequent) sick days at home, I catch up with Dr.Oz.  In recent programs, Dr.Oz has started touting the benefits of Smoothies. Well, who doesn’t love a fruit smoothie?! Oh wait..you actually put a variety of green leaves & stems in these smoothies? Not sure I’m a fan. The only time (a couple of years ago) that my husband, Steve & I, tried to pull out an old juicer hidden for years & use it, we were not impressed. After buying every juicing ingredient we could find & loudly juicing them together in the juicer, we came to a couple of conclusions: We put a healthy amount of fruit & vegetables into the unit and were only able to share about a 1/2 cup each of this dark green concoction and we also had a huge mess to clean up. So it was easy to understand how our enthusiasm for smoothies got pulverized along with all of the ingredients.

Enter NutriBullet..

As I have mentioned above, I stay in the never-ending search for products and medical solutions, and as a Sjoggie, that is unlikely to change. But as we periodically do, Steve & I declare that we really do need to get healthy & it’s now or never…blah blah blah. With that newly revived mindset, Steve said to me at the beginning of this week, “Hey, you want to go by Best Buy & take a look at that ” As Seen On TV “ NutriBullet?? Nutri what? Say it again…it’s a what? Well, this was one “As Seen On TV” commercial that SjoDry had missed. (Probably in a sleep coma on the couch from my Sjogren’s fatigue, no doubt). Sure, let’s go see it.

Of course we bought the NutriBullet. We eagerly opened the box with all of it’s parts & pieces, and the hardback Smoothie Recipe Book. The book not only contained what appeared to be some delicious smoothie recipes, it also has a large number of people giving their testimonial about their experience with the NutriBullet Smoothies. Now normally on these (wonder if they really got paid) testimonials, I pay little attention. But I am always sucked in with a before & after story (no matter whether it’s Weight-Watchers; HGTV or anything else). When it has the Before & After presentation, I am really captivated. So back to the NutriBullet Testimonials..there are many people who use these Smoothies for weight loss, but there are also many people using them to help their medical conditions. Several medical conditions were presented (A.I., Poor Immune Systems, Heart, etc.). The featured testimonials all boasted about reducing their weight, meds & their bloodwork levels. But the universal result that every person listed was a huge increase in their energy! Okay..now you really have my attention.

Deja-Vu…

We enthusiastically took turns preparing our Nutri Smoothies. After pouring the smoothie into my NutriBullet cup, I was stopped in my tracks. What you may not know is that SjoDry has a very weak stomach & can be launched into heaving action on a dime. When I looked at my smoothie, I was transported in time about 30 years to the days of our kid’s really yucky, and barf-producing diapers and their green contents! I told Steve, I’m not sure this smoothie plan is going to work for me. But I knew that I would never find out if this was my magic bullet unless I tasted it. So with my skeptical & cringing face, I took a tiny, green sip. To my shock & pleasant surprise, it tasted wonderful! It was like the delicious tasting, non-veggie smoothies that I so fondly remembered from the past. It was easy to finish drinking the smoothie..but I will still need to work on the appearance of the drink and my olive green flashbacks! For now I can tell you that I have had a smoothie for two breakfasts (in replacement of my food). I have been surprised at how full they have kept me with no roller coaster blood sugar dives. In fact, I worked right through lunch & realized that I had not eaten my typical frozen Lean Cuisine fare. We both felt the same when we had smoothies for our dinner one night. The smoothie was very filling and neither Steve or I made one of our typical snack runs to the kitchen! Can I get a ShamWow on that success ! (Another As Seen On TV product) haha.

Stay Tuned For Future Updates

So as it stands right now.. SjoDry may have found one of her Magic Bullets! For those of you who may share my weak stomach or concerns about tastes…have no fear! I was amazed that we really cannot taste the healthy greens in these smoothies. And even more interesting, I actually used spinach that still had the stems..& they were pulverized beyond view or taste. Of course I love the fact that these Smoothies leave me with no embarrassing green particles on my teeth! I will be weighing the success of these smoothies on my scale and on my thighs (hint hint) and watching closely for ANY added boost(s) in energy.
If you are considering a Smoothie approach for your diet or as a supplement to your diet, and after checking with your physician..of course, SjoDry is urging you to ‘ go ahead & ‘ BITE THE BULLET ‘!

Here’s to your Sjoggie Health, may the Smoothies be with you!

SjoDry and sippin..

 

 

 

 

 

Posted in Food & Diet, HUMOR, Over The Counter (OTC) Products, Random, Searching for Answers, Symptoms | Tagged , , , , | 4 Comments

SjoDry’s new addiction..

I am not a Pharmacy Rep…

I do not push products on anyone, but I, like most of you, am a patient who suffers the daily challenges of Dry Mouth. And also like you…I spend a ridiculous amount of money trying to find over-the-counter products that work FOR ME for all of my Sjogren’s manifestations which lend themselves to such products.

The Sjogren’s Syndrome Foundation conducted a recent survey among it’s members to try to identify how much we Sjoggies spend on (OTC) Over The Counter products? Sjogren’s Patients spend between $2000 – $4,700.00 annually for OTC products, which by the way, are not covered by insurance…but I won’t start on that rant right now.

I like Research-Based Products that work..

Don’t we all? I have an earlier blog post on my site where I coined a term to describe myself: “Cyber-Searcher”. Specifically, it relates to my continuous and never-ending researching activities online. Yes, curious minds want to know..but it’s more than that. What I have learned through my many years of being medicated by lots of Docs in different specialties, is that I am  the only one who is paying attention to what is going into my body on a daily basis or any contra-indications there may be. This is true..also, when I am buying seemingly benign over-the-counter  products in the drugstore or online.

So to get to my point here…

I'm addicted!

I’m addicted!

I have found a product that I am addicted to for my dry mouth. I don’t usually fall in love with any product and just hope for the best. But my coveted “Green Gum” has become a staple in my dry mouth arsenal. Specifically, the name of this green gum (which reminds me of the chicklets gum I used to chew & eat as a kid) is called, ” MighTeaFlow ” Dry Mouth Gum, and it is produced by the Camellix Company. : https://www.camellix.com

I discovered that one of the main ingredients in this gum is Green Tea. Of course my researching efforts led me to many articles explaining the medicinal and healing qualities of Green Tea. I also had the pleasure to meet the creator of this gum, Dr. Stephen Hsu (shoe), http://socksonanoctopus.com/blog/2014/03/ted-talks-dr-stephen-hsu-success-hardship/#.U3ZRxtJdV8E at the recent Sjogren’s Foundation Patient Conference. I was very impressed with the display of this gum’s phase two clinical trial statistical results. http://news.gru.edu/archives/11921 I liked that the gum was created by a doctor who is a professor at the College of Dental Medicine at Georgia Regents University and conducts all of the research to prove the benefits.  Chewing one piece of this tasty gum is equal to drinking one cup of Green Tea. But more importantly for me… the driving question and bottom line is, does it work? Will it provide more saliva to me?? And the answer is a resounding YES!

Unfortunately, on a day trip in the car, my husband saw me getting a piece of my “special” gum out of my purse & asked if I had another piece? Hmm. Okay, I did what every good wife would do, and shared with him. I tried not to think about how difficult it seemed to be as I parted with that piece of gum and had a brief moment of guilt for feeling that way. And now, my husband is also in love with my purse-protected gum. The dry mouth benefits of my gum are important of course..but the flavor of this gum and how long it lasts..is what caused my addiction. I personally, have never chewed any piece of gum in which the flavor lasted so long and I didn’t end up feeling like a cow chewing cud. At this time, it can only be ordered online. If I am being honest… it is a bit more pricey than I would normally pay for a regular pack of gum…but….it is not a regular, everyday gum and when I think about what I have spent on the many other products that I have purchased that didn’t work..the price is a small price to pay for a product that I know will work for me.

I think what I am ultimately saying here, is that it feels reinforcing to me as a patient, to identify the products that truly help me. It is one less thing off of my heavy, Sjogren’s plate. And research is research, but when the research so matches the quality of the product and does what it says the product will do AND…tastes great in the whole process… Well, you can see why I have become happily addicted and am bubbling over with enthusiasm for this yummy gum.

While at the convention and waiting to step up to the Camellix Table with my green gum on it, I heard a woman discussing the Camillex Shampoo with another woman. I really was not trying to listen in on this conversation, but I could not help myself when I heard the lady mention that the Camellix Shampoo was sulfate-free. I had just seen a celebrity stylist on Dr. Oz a couple of days before the convention, explaining that people with severely dry hair should be using a Sulfate-free Shampoo. Of course, since I’m styling my typically dry, scarecrow hair..my ears perked up. The lady went on to say that she & her sister both have thinning hair that is a problem shared by several in her family. I don’t know if I am there yet…but I sure am starting to see more clumps of hair fall out of my head..so I continued to pay attention to her conversation. She told the other woman that she & her sister had been using Rogaine shampoo for a long time, but that she switched to the Camellix Shampoo just to try it. She said that her hair was now much fuller & she had totally stopped using her previous shampoo & her sister wanted to know what she had done differently because her hair looked so full & shiny?

I don’t know about you..but that overheard conversation was enough to make me want to try the shampoo. I am currently using the shampoo, though the jury is still out on my final evaluation of it & how it is working for me. Also, I complicated issues because I got, what can only be described as a brunette version of a, ‘Little Orphan Annie’ perm. But I will update my research findings at a future date.

But back to my gum, all of the members of the local Sjogren’s Support Group that I run have had samples of the green gum and love it. (hint..the company will send you samples if you call them). As I mentioned, I am not any kind of sales rep for the Camellix Company or my new-found saliva-producing gum, I just like to share any helpful information for my fellow Sjoggies when I find it because I know that we are all searching.

Here’s hoping that your search for successful products is a short one!

Enjoy your weekend!

SjoDry

 

Posted in And the research says..., Over The Counter (OTC) Products, Random, Searching for Answers, Symptoms, Videos | Tagged , | 3 Comments

There’s hope on the horizon for Sjogren’s Syndrome!

I just returned from the 2014 Sjogren’s Syndrome Patient Conference…and just like last year, I came back excited, revved up and totally hopeful! The speakers were excellent and shared great information.

The information I will post here is the exact information that was provided by Dr.Theresa Ford who is the Medical Director of  the North Georgia Rheumatology Group.  I was sorry I had to leave to catch my plane & did not hear this particular information in person.

But the official message from Dr. Ford’s presentation notes say: The next decade should start to bring major changes in the treatment of Sjogren’s! 

I am excited. As I listened to the discussion on the Clinical Guidelines for Sjogren’s Syndrome that Medical providers will be able to access in order to diagnose and treat Sjogren’s patients, I could not help but to be hopeful. The intense struggle for Sjogren’s patients to be heard & helped that so many of us live, will some day be a thing of the past.

Until then, let’s all keep getting the word out!

SjoDry and Hopeful!

Specifically, Dr. Ford shared the following information about What’s In The Clinical Pipeline for Sjogren’s Syndrome:

My fellow Sjoggies...there is hope on the horizon!

My fellow Sjoggies…there is hope on the horizon!

Posted in And the research says..., Scholarly Articles and Such | Tagged | 6 Comments

Sung to the tune of…” Leaving On A Jetplane”…

Some people call it ” Slap Happy “…

I call it, my wacky sense of humor. I was blessed with a sense of humor that defies understanding. So why is it that these crazy ideas & moments pop into my head? I have no answers. As I sat here contemplating my upcoming trip on Thursday to attend the Sjogren’s Patient Conference in Chicago, I found myself humming the old Peter, Paul & Mary song, Leaving On A Jetplane “. But then a crazy thing happened..as they usually do in my head… I changed the words. Yes, I cracked myself up as I did so. And so…here goes:

All my bags are packed, I’m ready to fly

I’ve got the “green gum” to combat my dry–

Already I’m so pumped, that I could sigh…

All the Sjoggie Info, that I will learn

And even a few words

When it’s my turn..

I’m so excited

I’m about to fly

Chorus:

So miss me

And very soo–une

We’ll talk Autoimmune

Sjoggie Protocols & Treatments too…

This can only mean…

that it has been way too long since my last vacation! And, that I am excited to reconnect with a few of my Sjoggie friends and foundation members. Oh yeah…and maybe there’s a little bit more going on that just my brain fog. But hey, I am not going to knock my unique sense of creativity..at least it is still working!

Seriously, my fellow Sjoggies, attending a Sjogren’s Patient Conference feels like a comfortable home-week with your closest kindred spirits. We just skip the high fives because they hurt too bad.

Obviously, SjoDry has all of her Dry Products & Prescriptions Arsenal packed & ready to go.  For those of you who will be joining me in Chicago…please send me your comments about some of your conference favorites after you return. You don’t even have to put them to music!  See you soon!

SjoDry and Singing

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And The COUNTDOWN is on…

2014 Sjogren’s Syndrome Patient Conference

After having attended my first national Sjogren’s Syndrome Patient Conference last year & having enjoyed it immensely, I am officially excited to attend this year’s conference. Of course I feel that it is my duty to turn into a Sjoggie Sponge & bring back all of the latest cutting-edge information, research and SSF directions to our Sjoggies In Pittsburgh (SIP) support group. In fact, that will be our next topic at our May 3, 2014 SIP meeting. And for those of you who understand my cognitive decline..don’t worry, I’m taking Sandy, my SIP Co-leader, and a paper/pen for my information back-up system.

Put On Your Trusted Shoe Inserts..

Yes, Sjodry and Sandy (and hopefully some of our SIP members from Pittsburgh) will be participating in the Chicago Sjogren’s Walkabout. It is our chance to put in our most trusted shoe inserts and take to the (hopefully warm & sunny) streets of Chicago to help raise funds for the Sjogren’s Syndrome Foundation. But don’t be alarmed because I don’t SWEAT! Or at least not much.  LOL, can you relate? Not sure if that’s a Sjoggie silver lining here or not?

Everyone has their own way of coping with their illness(s). For me, I blog, I use humor & I reach out to others to help them in our shared journey of living with Sjogren’s and chronic illness. I don’t know about you..but I do my fair share (and my husband might disagree with the word fair ) of whining about how bad I feel. In fact, I could probably just take a piece of paper & write the same sentence multiple times on a page & then just complete all of the blanks which apply on that or any other given day. So when I get a chance to help the foundation or someone else in a way that I know I can accomplish without triggering a a flare…I am there.

For those of us who live with Sjogren’s Syndrome each day, we have learned over the years about how many people have never heard of, understand or even treat Sjogren’s Syndrome. To me, that serves as a call to action! I have spent thousands of dollars through the years in trying to find a physician that could identify what was and is still happening to me, diagnose it properly and then find an effective treatment plan. I want the best quality of life that I can have. I believe that all Sjogren’s patients deserve to have the best quality of life that they can achieve. That means doctors, dentists, dental hygienists, immunologists, rheumatologists, eye doctors and all of the many other medical practitioners in our communities at large, MUST become knowledgeable about Sjogren’s Syndrome in every aspect. It means that we need copious research to develop definitive tests and treatments for the disease.

A Call To Action!

So how can you help?

There are many ways to lend a hand to the Sjogren’s Syndrome Foundation during April, which is Sjogren’s Awareness Month (or any month for that matter). Becoming an Awareness Ambassador for the foundation is a volunteer role that requires whatever amount of time & energy you can share, whenever you feel like sharing it. There is only one task for the Sjogren’s Awareness Ambassador, and that is to deliver Sjogren’s Syndrome Information to a health professional. The foundation may choose a specific time period  and designate a specific type of doctor that they would like to target with the information. Or you can just pick. Now think about how many doctor’s appointments we have? I always have at least 2-4 doctor’s appointments monthly, and sometimes more. All I do, is pick up a small stack of Sjogren’s materials that have been sent to me from the foundation. While I am at my appointment (either before the appt. or after), I let my Doc know, that by the way, as an Ambassador to the Sjogren’s Foundation, I have some materials for you about Sjogren’s Syndrome. That’s it! Done…I have just done my Ambassador duties. Again, no sweat.

Another way that you can help is by participating in a Sjogren’s Walkabout. The foundation folks are really nice in helping to plan the walkabout routes. You see, they know that there are a lot of Sjoggies (like me) who have foot neuropathies and may not feel like walking too far. But since I have already completed one Walkabout last year, my feet have given their ‘Not Too Far Or You’ll Be Sorry” stamp of approval for the Chicago Walkabout. But you still may be saying, ” My feet won’t allow it “ or maybe you’re not even coming to the conference this year. And that’s okay too. That is why the Sjogren’s Foundation has teamed with with the First Giving Folks, an organization that helps Non-Profit Organizations to set up various fund-raisers in a diverse group of cities.

And with that….

comes my.. “if you are so inclined pitch, with an opt out choice”.  Some people choose to support others in their Walkabout efforts. Sjodry has created a Chicago Walkabout Team named in honor of the (SIP) Sjoggies In Pittsburgh Support Group in which she co-leads in Pittsburgh, PA. Both co-leaders of the group and select Pittsburgh SIP members who have chosen to attend this year’s conference will revv up their enthusiasm for a Walkabout Chicago en Sjoggie masse.

If you would like to support us in our fund-raising efforts, you may find Sjodry’s (Sandy Burkett) First Giving Page at this (link).

If I look cool after I complete the walkabout…pictures will follow.

Sjodry

S & S 2014 Sjogren's Syndrome Walkabout

 

 

 

 

 

 

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